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Reintroducing… An “Impossible” Person January 23, 2024

Posted by ajoyfulpractice in "Impossible" People, Changing Perspectives, Dharma, Healing Stories, Health, Hope, Life, Loss, Music, One Hoop, Pain, Philosophy, Science, Suffering, Wisdom, Yoga.
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Breathe in… and savor the best parts of your life. Breathe out… and let go of something that keeps you from savoring the best parts of your life.

This is the first part of “Doing: Lessons in unexpected, ridiculously inconvenient, unplayable things (& ‘impossible’ people).” A version of the following was originally posted in 2021 (and reposted, in a different contexts, in 2022 and 2023). Click here for that philosophical 2021 post in it’s entirety.

“From a practical standpoint then, svadhyaya is the process of employing the power of discernment and maintaining a constant awareness of who we are, what we are trying to become, and how the objective world can help us accomplish our goal.”

— commentary on Yoga Sūtra 2.1 from The Practice of the Yoga Sūtra: Sadhana Pada by Pandit Rajmani Tigunait, PhD

The Yoga Sutras offer a detailed explanation of the dysfunctional/afflicted thought patterns that create suffering. Patanjali described those thought patterns as ignorance, the false sense of self, attachment (rooted in pleasure), aversion (which is attachment rooted in pain), and a fear of loss/death. He established ignorance (avidyā) as the root of the other four and stated that this groundwork is established no matter if the ignorance is dormant, attenuated, disjointed, or active. He then broke down the different ways avidyā manifests in the world — which basically goes back to the ways in which we misunderstand the nature of things — and how the other four afflicted thought patterns rise up.

We can find examples of how avidyā and the other four dysfunctional/afflicted thought patterns manifest all around us. There are, therefore, also examples of how the sources of our ignorance can be the path towards freedom, fulfillment, and more clarity. One example of this is how some people view those that are not considered “able bodied.” Think about the activist Edward V. Roberts, for example.

“I fell in love, like many people do. We do that as well. And it became ridiculously inconvenient to have my attendant pushing me around in my wheelchair with my girlfriend. It was an extra person that I didn’t need to be more intimate. I learned how to drive a power wheelchair in one day. I was so motivated to learn something that it changed in many ways my perception of my disability and of myself. She jumped on my lap and we rode off into the sunset or to the closest motel.”

— Ed Roberts in a 60 Minutes interview with Harry Reasoner

Known as the “Father of the Independent Living” movement, Mr. Roberts was born today in 1939. By all accounts, he spent his formative years as a “regular” boy. Then, at the age of fourteen, he contracted polio — this was in 1953, two years before the vaccine ended the polio epidemic. The virus left the active, “sports-loving” teenager paralyzed from the neck down, with mobility only in two fingers and a few toes. It also (temporarily) crushed his spirit. He initially spent most of his days and all of his nights in an 800-pound iron lung. When he wasn’t in the iron lung, he used “frog breathing” — a technique that uses the facial and neck muscles to pump air into the lungs.

Now, if you have not interacted with someone with a disability, you might think — as Ed Roberts initially thought of himself — that he was a “helpless cripple.” You might, like him and one of his early doctors, back in 1953, think that there was no point to his life. You might think that he couldn’t do yoga; couldn’t get married (and divorced); couldn’t have a child; and definitely couldn’t do anything to change the world. You might think that he wouldn’t be celebrated.

But, if you think any of that — just as he initially thought that — you would be wrong.

“There are very few people even with the most severe disabilities who can’t take control of their own life. The problem is that the people around us don’t expect us to.”

— Ed Roberts in a 60 Minutes interview with Harry Reasoner

Just to be clear, to my knowledge Ed Roberts didn’t practice yoga. However, he did practice Shotokan karate. Also, it is interesting to note that (a) the glottis (which includes the true vocal chords and the rima glottidis or empty space at the back of the throat) that we engage to practice Ujjayi prāņāyāma, is the same area he would engage to breathe without the iron lung and (b) once he changed his understanding of himself — let go of his “false sense of self” — he was able to change the world.

Even though he could attend school by telephone, Zona Roberts, Ed Roberts’s mother, insisted that he attend school in-person one day a week. for at least a few hours. She also encouraged him to think of himself as a “star” and to advocate for his own needs. So, when he was in danger of not graduating from high school, because he hadn’t completed driver’s education or physical education, he pushed back on those who would limit him.

After graduating from high school, he attended the College of San Mateo and the University of California Berkeley — even though one of the UC Berkeley deans wanted to reject him because someone else had had an unsuccessful bid at college and the dean viewed all people with disabilities as a monolith. At Berkeley, Mr. Roberts pushed to have on-campus housing that would accommodate his needs and, once that was established, pushed the university to admit and provide the dormitory experience to other people with “severe disabilities.” The Cowell Residence Program became a model for universities around the world.

Mr. Roberts and some of the other students in the Cowell Residence Program referred to themselves as the “Rolling Quads.” They were very active in changing people’s perceptions and understandings and, therefore, they were able to change policy and infrastructure. “Curb cuts,” the ramped opening between a sidewalk and street, are one of the changes that resulted from their activism. After Ed Roberts graduated with a Bachelor’s and Master’s in Political Science, he went on to teach at an “alternative college.” He also served as Director of the state organization that had once labeled him too disabled to work and eventually co-founded the World Institute on Disability (at Berkeley). His activism — including protesting at the San Francisco offices of the Carter Secretary of Health, Education, and Welfare and testifying before Congress — led to the creation of the Americans with Disabilities Act (ADA, 1990).

“And I literally went from like 120 pounds to 50 pounds. I also discovered how powerful the mind is, when you make up your mind.”

— Ed Roberts in a 60 Minutes interview with Harry Reasoner

If I remember correctly, I first dug into Ed Roberts’s story because someone on the internet mentioned him and his birthday. Maybe this was in 2017, when there was a Google Doodle to honor him. Or, maybe I made a note to myself when I saw the Google Doodle and then incorporated it into a class the following year. Either way, I had time to dig in.

Perhaps, since some of my themes are date-related and I do keep an eye out for such things, one might not consider my heightened awareness of Ed Roberts as being overly synchronistic or serendipitous. This is especially true considering that my annual participation in the Kiss My Asana yogathon is one of the many things that predisposes (or conditions) me to pay attention to stories about accessibility. If anything, I could kind of kick myself for not digging into his story sooner.

But, we only know what we know and we don’t know what we don’t know. The odds are pretty high, though, that I would have eventually come across his story and his legacy — which provides a lot of reminders about how to move through the year in a way that brings change that makes the world better than we found it.

“My bottom walk-away experience that I believe I carry with me every day is that my father never settled for anything and always fought for everything. And he always, always followed his gut, followed his passion, went with it no matter who was against him, and oftentimes there was more people against him than it was for him.

So I’ve always followed my gut and followed my passion. And in so many different speeches, he would always encourage that person to look within themselves, find their passion, follow it. You can’t… You can’t go wrong with your gut. You can’t go wrong with your passion. Don’t ever settle. He never settled. I’ll never settle. I carry that with me every day, and if there’s anything he loved to pass on, it’s just go for it.”

— quoted from “A Day in the Life of Ed Roberts: Lee Roberts Talks About His Father, Ed Roberts” by Lee Roberts

Please join me today (Tuesday, January 23rd) at 12:00 PM or 7:15 PM for a yoga practice on Zoom. You can use the link from the “Class Schedules” calendar if you run into any problems checking into the class. You can request an audio recording of this practice via a comment below or (for a slightly faster reply) you can email myra (at) ajoyfulpractice.com.

Tuesday’s playlist is available on YouTube and Spotify. [Look for “07112020 An Introduction”]

In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)

Errata: This post has been updated to more accurately describe the anatomy related to “frog breathing.”

### Wake Up Your Mind & Just Go For It! ###