Happy Diwali and Kali Puja! Blessings, light, love, and peace to everyone, everywhere on World Osteoporosis Day!
This post-practice post for Monday, October 20th, is a compilation post featuring some quick notes and excerpts. Please note that linked excerpts direct you to posts that will include content related to a specific year and, therefore, may include references to different holidays/events. The 2025 prompt question was, “How do you let your little light shine?”You can request an audio recording of this practice or a previous practice via a comment below or (for a slightly faster reply) you can email myra(at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es).
Donations are tax deductible; class purchases are not necessarily deductible.
“The light of the eyes makes the heart happy; good news fattens the bone.”
— Mishlei — Proverbs (15:30)
Monday, October 20, 2025 was the the third day — and, for some, the biggest day — of Diwali. In some areas, this celebration is also known as Kali Puja. Since the five-day celebration of Diwali is based on a lunar calendar, it falls at a slightly different on the Gregorian calendar each year. This year, the biggest celebrations fell on the same day as World Osteoporosis Day!
Click on the excerpt title below for more about the first three days of Diwali.
According to the International Osteoporosis Foundation, “osteoporosis remains severely underdiagnosed and undertreated—especially among those who have already sustained fragility fractures. Shockingly, up to 80% of patients with osteoporotic fractures receive no follow-up diagnosis or treatment. The consequences are devastating: chronic pain, disability, loss of independence, increased risk of future fractures, and premature death. Families, healthcare systems, and economies also shoulder the heavy burden of this neglect.” The 2025 theme highlights the fact that it is unacceptable for over 500 million people, worldwide, to live with a condition that is underdiagnosed, undertreated, and preventable.
Click on the excerpt title below for more about World Osteoporosis Day and how our practice helps our bones.
“Those who practice yoga say it is life changing. Those of us who are as flexible as a piece of lumbar are not so sure. I admire yoga’s rich history, more than five thousand years old, but I run into a few mental roadblocks in understanding concepts like grounding and spinal energy. In fact, I was sitting in my slumped-over and crooked version of the lotus position during a special yoga class taught by Bruce’s mentor Matthew Sanford, when Matthew said to a student, ‘Breathe into your spine for God’s sake!’ I had no idea what that meant. The student understood though, and he made proper adjustments. What was remarkable was that both teacher and student were in wheelchairs.”
— quoted from “24. Dis Ease Yoga” in When Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
There is no playlist for the Common Ground Meditation Center practices.
NOTE: I reference the Gāyatrī Mantra and Atharva Veda (6.8) during this practice, both of which are on the playlist available on YouTube and Spotify. [Look for “Diwali (Day 3-4) 2022”]
If you are thinking about suicide, worried about a friend or loved one, or would like emotional support, you can dial 988 (in the US) or call 1-800-273-TALK (8255)for the Suicide and Crisis Lifeline. You can also call this TALK line if you are struggling with addiction or involved in an abusive relationship. The Lifeline network is free, confidential, and available to all 24/7. YOU CAN TALK ABOUT ANYTHING.
White Flag is an app, which I have not yet researched, but which may be helpful if you need (non-professional) support.
“Chag sameach!” to those celebrating Sukkot! Many blessings to everyone and especially to anyone grateful for friendship, peace, freedom, understanding, and wisdom.
May everyone be healthy and strong; may everyone be peaceful and happy.
This is the “missing” post for Sunday, October 20th.It includes some previously posted content. You can request an audio recording of this practice via a comment below or (for a slightly faster reply) you can email myra(at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es).
Donations are tax deductible; class purchases are not necessarily deductible.
“I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”
— quoted from “Love & Relationships” in Rainbow in the Cloud: The Wisdom and Spirit of Maya Angelou by Maya Angelou
How do you feel when someone you enjoy being around enters the room? Imagine someone you love, trust, and respect; someone whose light shines bright in every room they enter. Express gratitude for that person’s presence in your life and notice how that feels.
Now, how would you feel if they came bearing good news about their good fortune? Or, how would you feel if that good news was about something fortuitous that was happening for you? How do you feel when you add more gratitude to the mix?
More importantly, can you feel what you are feeling all the way down to your bones?
“The light of the eyes makes the heart happy; good news fattens the bone.”
— Mishlei — Proverbs (15:30)
While some modern (Christian) translations of Mishlei/Proverbs 15:30 use the word “fat” in some way, many use words like “gives [good] health”, “refreshes”, “nourishes”, “invigorates”, “makes the bones healthy”, or “strengthens”. Others focus on the ultimate meaning: that this is about the health, prosperity, and the overall wellbeing of the person. Whichever way you view it, we all want and need strong, healthy bones: “fat” bones, if you will. The need and desire to have them and cultivate them — even “fertilize” them — becomes more important the older we get, because age can cause bone health to diminish.
In fact, years and years ago, one of my yoga-buddies, Sister Karen, forwarded me an article about studies showing that some asanas and some styles of yoga are good for bone health. Since she and some of the other people in her community are of an age where they are thinking about their bone-density, she wanted to know what I would recommend. As it turned out, the article mentioned poses that we do in almost every vinyasa practice. In fact, a typical vinyasa practice is a weight-bearing practice — which is recommended for good bone health.
Since we are taking every opportunity to express gratitude during Sukkot, give thanks if you are already doing something good for your bones!
Now, give thanks for the possibility of learning more about your bones (since the 2024 observation of World Osteoporosis Day falls during Sukkot)!
FTWMI: The following is a slightly remixed version of a 2021 post entitled “To the Bone”.
“When the bones are good, the rest don’t matter Yeah, the paint could peel, the glass could shatter Let it break ’cause you and I remain the same When there ain’t a crack in the foundation Baby, I know any storm we’re facing Will blow right over while we stay put The house don’t fall when the bones are good”
— quoted from the song “The Bones” by Maren Morris
Unless something goes wrong, our bones are something we very rarely talk about. Sure, when I taught Yin Yoga on a regular basis, my quick-and-dirty explanation for the different engagement was that in vinyasa and other weight-bearing exercises, we are typically squeezing our muscle and skin into the bones, while with Yin Yoga (and Restorative) we want the muscle and skin to melt away from the bones. However, that’s not even completely accurate. While we do squeeze the muscle (and the skin) into the bones in order to move the bones, once we are holding a pose, proper alignment can give us an opportunity to relax some of the muscle and skin.
Also, I’ve done some special events where I talk about “Dem Bones” —referencing the way our bones are connected and the song (which, by the way, is virtually impossible to add to a playlist) — but, even then, I wasn’t talking about bone health. All that changed (in 2021) when I learned that October 20th is World Osteoporosis Day.
Originally conceived in 1996, by the United Kingdom’s Osteoporosis Society (and supported by the European Commission), World Osteoporosis Day has been organized by the International Osteoporosis Foundation (IOF) since 1997, and recognized by the World Health Organization since 1998. It is a day dedicated to “raising global awareness of the prevention, diagnosis and treatment of osteoporosis and metabolic bone disease.” The 2024 theme is “Say No To Fragile Bones” and includes a year-long campaign centered around building stronger bones through movement. Of course, the campaign centers around education and awareness about the importance of bone health and what we can do — at any age or ability — to promote it.
“Those who practice yoga say it is life changing. Those of us who are as flexible as a piece of lumbar are not so sure. I admire yoga’s rich history, more than five thousand years old, but I run into a few mental roadblocks in understanding concepts like grounding and spinal energy. In fact, I was sitting in my slumped-over and crooked version of the lotus position during a special yoga class taught by Bruce’s mentor Matthew Sanford, when Matthew said to a student, ‘Breathe into your spine for God’s sake!’ I had no idea what that meant. The student understood though, and he made proper adjustments. What was remarkable was that both teacher and student were in wheelchairs.”
— quoted from “24. Dis Ease Yoga” in When Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
The word “osteoporosis” comes from Greek words meaning “bone” and “passage” or “pore.” The condition causes bones to weaken form the inside out and become so fragile that the simplest things can can cause the bones to break or fracture. By “the simplest things,” I mean that someone with osteoporosis can suffer a break or a fracture when they sneeze, make a sudden movement, bump up against something, and/or experience a a minor fall or stumble. Sure, we may think about the possibility of breaking a bone when someone has a major fall; but, if your bones are brittle, even stubbing your toe on something and then catching yourself before you tumble to the ground can result in a severe injure. Keep in mind, also, that a minor fracture when you have healthy bones may or may not be a big deal. However, osteoporosis-related fractures can be life-threatening and are a major cause of pain and long-term disability.
According to the World Osteoporosis Day website, 1 in 3 women and 1 in 5 men, age 50 years or older, will suffer an osteoporotic fracture. That works out to millions and millions of people — many of whom will not seek treatment. Additionally, statistics indicate that only about 20% of people with osteoporotic fractures are actually treated for osteoporosis. That translates into millions of people who may have a fracture or a break treated, but remain at high risk for more fractures and more breaks — and that can translate into a major drain on the healthcare system.
The older we get, the more likely we are to fall and there is sometimes a tendency to handle our bones with care. But, sometimes we go too far in our efforts to protect ourselves and actually create more risk.
The human body is designed to move and to stay mobile. Consider the fact that even when we are not moving on the outside, there are lots of things inside of us that are in constant motion. For example, the spine reacts to breathing unless something gets in the way. There’s a micro-extension when we inhale and a little bit of flexion when we exhale. This little bit of movement is one of the ways the spine stays healthy and balanced and one of the ways it supports us and our nervous system. Take away that little bit of movement and we’ve got some problems.
“Jo and I discovered that alignment and precision increase mind-body integration regardless of paralysis. The mind is not strictly confined to a neurophysiological connection with the body. If I listen inwardly to my whole experience (both my mind’s and my body’s), my mind can feel my legs.
This is one of those truths that is easy to pass by, like the existence of dinosaurs. But in fact, it should dumbfound us – that, on some level, something as simple as the more precise distribution of gravity can transcend the limits set by a dysfunctional spinal cord. When I move from a slumped position to a more aligned one, my mind becomes more present in my thighs and feet. This happens despite my paralysis. It is simply a matter of learning to listen to a different level of presence, to realizing that the silence within my paralysis is not loss. In fact, it is both awake and alive.”
— quoted from “14. Maha Mudra” in Waking: A Memoir of Trauma and Transcendence by Matthew Sanford
If you are currently a fairly ambulatory person, you may take your mobility for granted; you may even underestimate the fact that walking — like yoga — is a great weight-bearing exercise for the bones. Here is even more good news (that I hope you feel in your bones): Both yoga and walking include a little balance — even when you don’t realize you’re balancing.
Remember, whenever you take a step, there is a moment when you are balancing on one foot. We may not think very much of it when we are in the prime of our lives; however, being able to stand on one foot (and then hop on one foot) is an important marker in child development. A toddler has to be able to stand on one foot in order to…well, toddle. By age 5 or 6, a neurotypical child should be able to balance on one foot for about 10 seconds; jump up and land with both feet; jump over an object that is 10 inches high; hop on one foot for about 20 feet (or more); and skip. Keep in mind that “normal” falls on a spectrum when it comes to child development. There’s no hard-and-fast timeline in terms of when a child goes from balancing on one foot for 4 seconds to balancing on one foot for 20 seconds (which is a marker for someone who is 7 years old). Similarly, some kids will walk on their tiptoes long enough for it to be recognized as a balancing marker, while others will not be super invested in that experience.
The body’s ability to balance is based on continuous communication and coordination between the brain, the inner ear, eyes, muscles, and joints. These parts of our overall system, and the communication between them, make up our proprioception and vestibular systems. Proprioception is how the brain uses the muscle and joints to find the body in space. The vestibular system — sometimes called the balance center — combines that awareness of the body’s position (in reference to the elements around it) with information about speed of motion (acceleration and deceleration) that is transmitted through the inner ear and eyes. This speed of motion information is largely based on the position of the head. Change one element and we wobble, maybe even fall.
— quoted from the song “Free Fallin’” by Tom Petty (b. 10/20/1950)
Dr. Tal Ben-Shahar, an expert in Positive Psychology and the author of Happier: Learn the Secrets to Daily Joy and Lasting Fulfillment and A Clash of Values: The Struggle for Universal Freedom, used to teach a class at Harvard University called “Happiness 101”. In his class and through his research, he offered 6 very practical tips for cultivating happiness. Those tips are featured in the practices during Sukkot (and highlighted here). They also dovetail nicely with the following five tips or steps to healthy bones and a fracture-free future, recommended by the IOF:
EXERCISE:Exercise regularly to keep your bones and muscles moving. For bone health, focus on weight-bearing, muscle-strengthening, and balance-training exercises.
NUTRITION: Ensure your diet is rich in bone-healthy nutrients like calcium, vitamin D, and protein. You can combine these first two elements by talking a walk (or run) outside in order to absorb a little vitamin D through safe exposure to the sun.
LIFESTYLE: Avoid negative lifestyle habits by maintaining a healthy weight and avoiding smoking and excessive amounts of alcohol.
RISK FACTORS: Some bone issues are genetic; so, make sure you know your family history and talk to your health care practitioner about any old fractures or bone pain. Also, talk to your health care provider about any medication that might affect your bone health.
TESTING & TREATMENT: One of the big activities around World Osteoporosis Day is bone-strength testing for people 40 years or older and people in other high risk groups. Lifestyle changes and/or medication can help protect your bones. Furthermore, the earlier osteoporosis is detected, the effectively it can be treated.
Remember, in American English, “bad” has two meanings. Take a moment to consider what you can do so that you are “bad to the bone” in a way that is “even better than good,” rather than in a way that means your bones are “horrible” or “of quality”.
“I’m here to tell ya honey That I’m bad to the bone Bad to the bone B-B-B-B-Bad B-B-B-Bad B-B-B-Bad (Hoo) bad to the bone”
— quoted from the song “Bad to the Bone” by George Thorogood & The Destroyers
Sunday’s playlist is available on YouTube and Spotify. [Look for “10202024 Fatten the Bone (& Sukkot 4.5)”]
“‘Cause these dry-dry bones gonna rise up, gonna rise up
Gonna rise up, gonna rise up Gonna rise up, gonna rise up Gonna rise up
Take my hand let it set you free Keep working on your destiny There’s healing in the air, get touched Can you feel it ’cause the message is love”
– quoted from the song “Dry Bones” by Gregory Porter
If you are thinking about suicide, worried about a friend or loved one, or would like emotional support, you can dial 988 (in the US) or call 1-800-273-TALK (8255)for the Suicide and Crisis Lifeline. You can also call this TALK line if you are struggling with addiction or involved in an abusive relationship. The Lifeline network is free, confidential, and available to all 24/7. YOU CAN TALK ABOUT ANYTHING.
White Flag is a new app, which I have not yet researched, but which may be helpful if you need peer-to-peer (non-professional) support.
Many blessings to all,and especially to those observing Lent, Ayyám-i-Há,and/or Rare Disease Dayduring this “Season for Nonviolence” and all other seasons!
This is theabridged version ofa 2023 postrelated to February 29th(which was original posted with information from yesterday’s post). Some context and links (including a video) have been added/updated. There’s no practice today; however, you can request an audio recording of a previous practice via a comment below or (for a slightly faster reply) you can email me at myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)
“That’s the thing about a rare disease. You fight for a diagnosis for years ― on average, according to Global Genes, it takes seeing 7.3 physicians and trying for 4.8 years before getting an accurate rare disease diagnosis ― and then, even once you know, you must continue being a detective as you try to piece together the clues as to how the illness might progress. You become an expert in a disease you wish you’d never heard of.
As a parent, you also quickly morph into a nurse, therapist, chief operating officer, educational advocate, cheerleader and warrior. You feel alone, because by definition, your child’s diagnosis is exceptional. And yet, 1 in 10 Americans and 300 million people globally are living with a rare disease.
You find community not just in other people who share the specific diagnosis your family is facing, but in those struggling with any rare diagnosis. It doesn’t matter what the exact symptoms or disease trajectory are. What matters is the shared understanding that your dreams as a parent have forever shifted.”
— quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
In addition to being (what I would consider) a “liminal day,” February 28th can also be a “rare” day. Typically, when we think of a “rare” day on the Gregorian and Julian calendars, we think of February 29th, Leap Day, which is rare because it only happens every four years.** Leap day is the perfect day for Rare Disease Day, which is observed on February 28th during non-leap years like 2023. Observations on this alternate date, coincide with the anniversary of the United States House of Representatives passing the Orphan Drug Act of 1983 on February 28, 1982. The act went into effect on January 4, 1983, and it facilitated the development of “orphan drugs” (i.e., drugs for rare diseases and disorders). Japan and the European Union enacted similar acts in 1993 and 2000, respectively. Prior to the act being passed in the U. S., less than 40 drugs had been approved as treatments for rare diseases and disorders (in the whole history of the United States). In the three decades after the act went into affect, almost ten times as many drugs had been approved.
Why the difference? Why did it take an act of Congress?
Unfortunately for those who face life-threatening and life-changing diseases, research is primarily driven by pharmaceutical companies, which are mostly driven by profits — and there’s just not a lot of profit in rare diseases.
“That referral led us to the geneticist, who ended up delivering the information that changed our lives.
‘Dalia tested positive for a genetic mutation that’s associated with myoclonic epilepsy with ragged red fibers, or MERRF syndrome ― an extremely rare form of mitochondrial disease,’ the doctor said.”
— quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
Approximately 300 million people are living with a rare disease. That doesn’t sound very rare when you add in their family, friends, and caregivers. But, here’s the thing: those 300 million people are not living with the same disease. They are not even living with the same two or three diseases. In the medical community, a “rare disease” is typically defined as a disease that affects fewer than 1 in 2,000 people. That means it can affect one or two people, or several hundred around the world. In the United States, Huntington’s disease; myoclonus; Amyotrophic lateral sclerosis (ALS) – also known as motor neuron disease (MND); Tourette syndrome; muscular dystrophy; Postural Orthostatic Tachycardia Syndrome (POTS); Prader-Willi syndrome; and Usher syndrome are all considered rare diseases or rare disorders. Sickle cell anemia is also considered a rare disease; even though it affects approximately 100,000 people in the United States. Autosomal systemic lupus erythematosus, which is characterized by the presence of (the more common) systemic lupus erythematosus symptoms in two or more members of a single family, is also considered a rare disease.
Approximately 72 — 80% of rare diseases are known to be genetic. About 70% begin in childhood. Tragically, thirty percent of children diagnosis with a rare disease will not reach age 5. While some people have diseases that are degenerative, some people “outgrow” their disease. Another challenge, for people suffering from rare diseases and disorders, is that sometimes people can be suffering with “invisible” ailments — meaning that others perceive them as healthy. All of these differences in symptoms and situations makes it really hard to receive diagnosis and treatment — especially since healthcare practitioners (particularly here in the West) are taught to “lookfor horses, notzebras.” Unfortunately, rare diseases are really colorful zebras. They require patients and their family and friends to take on all the roles normally distributed between professionals.
Recently, another couple of layers have been added to the already complicated story of rare diseases. For a variety of really disturbing reasons — that I want to believe come from a lack of awareness and knowledge — people have started co-opting orphan drugs and using them for non-life threatening issues. In some cases, they are being used for purely cosmetic purposes without any regard for the people whose lives actually depend on the medication. (NOTE: This is also happening with treatments for “common diseases,” with equally devastating effects; however, those common diseases get more publicity, because they make up a larger share of the market.) On the flip side, COVID seems to have created a situation where some rare diseases are becoming more common — which means, as twisted as sounds, that some people are feeling more hopefully, because more research and development is being done with regard to their ailment.
Again, it all comes down to awareness, education, perspective, compassion, and empathy. Which is the whole point of Rare Disease Day.
Established in 2008, by the European Organization for Rare Diseases, Rare Disease Day is a day dedicated to “raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and [caregivers].” The 2023 theme “ShareYourColours” is an invitation to share your story. Whether you have a rare disease or whether you love and/or care for someone with a rare disease, sharing your story can be a way to raise awareness, stop the ignorance, and end stigma.
If you are not dealing with a rare disease, be open to hearing other people’s stories. As rare as they are, I have known someone dealing with almost all of the rare diseases and disorders that I used as examples (above). Or, I should say, I’ve known that I knew them, because they shared their stories. Listening, as Bruce Kramer pointed out, opens us “… a little bit more.”
“To be open is to embrace your own great big messy humanity, to cry in sadness but not despair, to recognize presence in the emptiness of the bitter moment of truth, to be afraid but not fearful. Dis ease presents the choice of being open or closed, and opening to her lessons, her gifts, her challenges, is not easy. But dis ease clarifies vision, bringing sight to the blindness of what you thought you knew about living, light to the darkness of cynicism that life’s grief piled upon itself can foster. I know ALS is a horror, yet when fully embraced, it has taught me, it has revealed to me pure unsullied, uncontaminated, unbelievable love.
In my heart of hearts, I know that love never dies.”
— quoted from “25. Faith, Part IV: What’s Love Got To Do with It?” in We Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
The 2023 playlist is available on YouTube and Spotify. [Look for “06142020 World Blood Donor Day”]
NOTE: Not all rare diseases are blood-based, but the playlist contains a blood-borne subliminal message.
*NOTE: A follow-up article by Jessica Fein was also published by Huffington Post [on] February 28, 2023.
**NOTE:According to the Julian calendar, Leap Year is every four years.On the Gregorian calendar, which is used by most people who will come across this post, it’s not that simple.
“A year is a leap year if it is divisible by 4 and is not a century year (multiple of 100) or if it is divisible by 400. For example, 1900 is not a leap year; 2000 is.”
— quoted from “2 — The Gregorian Calendar, 2.1: Structure” in Calendrical Calculations by Nachum Dershowitz, Edward Reingold
Many blessings to all,and especially to those observing Lent, Great Lent, Ayyám-i-Há,and/or Rare Disease Dayduring this “Season for Non-violence” and all other seasons!
This is the“missing” post forTuesday, February28th. Some religious information was posted in 2021 and will be included in the Wednesday post. You can request an audio recordingof this practice via a commentbelow or (for a slightly faster reply)you can email me at myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
– quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
Technically speaking, every day is a “liminal day” – a transitional or threshold day, a doorway in between moments; like the pauses in between the inhale and the exhale. However, Dr. Joan Borysenko talks about “liminal time” in a very specific context, one that fits into the paradigm of The Hero’s Journey. It is a time of ritual; the threshold between the known and the unknown; and – maybe most importantly – it is a moment time-stamped by grief, sandwiched between separation and return. All of this is why I consider the days of this week, and many of the days in the coming weeks, to be “liminal days.”
But this is not just a Myra-thing. These days are specifically designated by various traditions as in-between times. Not “regular” or “ordinary” days, but days when there is a heightened awareness of what’s to come and the need to be ready for what’s to come. On the Baháʼí Faith calendar, February 26th – March 1st are literally in-between days: they are intercalary days between the penultimate month of the year and the final month (which is the month of the 19-Day Fast).
For Those Who Are Not Familiar: The Baháʼí Faith is a monotheistic faith that believes in the oneness of God and religion, as well as the oneness and nobility of humanity. The community believes that, historically, there has been a “progressive revelation of religious truth” which has been shared with the world through the voices of the prophets or Divine Messengers, known as “Manifestations of God” (which include “Braham, Krishna, Zoroaster, Moses, Buddha, Jesus Christ, Muhammad, and, in more recent times, the Báb and Bahá’u’lláh”). People within the faith are taught to honor the value of different religious and philosophical traditions as well as the value of education, especially in science (which is viewed by some faiths as being contrary to religion). The Baháʼí calendar consists of 19 months, each with 19 days, and each month (and day) is named after an attribute of God. To maintain the integrity of the calendar, there are 4 – 5 intercalary days just before the final month.
While the customs and beliefs are different within these different traditions, people all over the world are actually preparing for some of the holiest times of their year: Christians observe Lent and Great Lent to get ready for Easter; the Baháʼí community observes the 19-Day Fast as they prepare for a new year – and these Springtime rituals contain very similar elements to each other and to Passover and Yom Kippur (in the Jewish tradition) and to the holy month of Ramaḍān (in the Muslim tradition). All of these rituals contain elements of the Yoga Philosophy’s niyamās (internal “observations”). They also fall under the rubric that Patanjali called kriyā yoga (“union in action”), which is a combination of the final three: tapas (“heat, discipline, austerity” and the practices that cultivate them), svādhyāya (“self-study”), and īśvarapraņidhāna (“trustful surrender to higher reality”). They involve fasting, prayers, reflection, self-study undertaken within a sacred context, and letting something go.
That last part is where the grief kicks in – because, whether you give something up for the Lenten season or you change your daily routine to accommodate a holy observation, the mind-body will experience some level of loss with some manifestation of grief. It will not be the same intensity of loss we experience when we lose a job or when we lose a loved one. Neither will it be the same level of grief.
However, no matter the intensity of the loss and/or grief, we have to figure out a way to move forward, into a new season of life – and while each person has an individual experience, they have it in community.
“That’s the thing about a rare disease. You fight for a diagnosis for years ― on average, according to Global Genes, it takes seeing 7.3 physicians and trying for 4.8 years before getting an accurate rare disease diagnosis ― and then, even once you know, you must continue being a detective as you try to piece together the clues as to how the illness might progress. You become an expert in a disease you wish you’d never heard of.
As a parent, you also quickly morph into a nurse, therapist, chief operating officer, educational advocate, cheerleader and warrior. You feel alone, because by definition, your child’s diagnosis is exceptional. And yet, 1 in 10 Americans and 300 million people globally are living with a rare disease.
You find community not just in other people who share the specific diagnosis your family is facing, but in those struggling with any rare diagnosis. It doesn’t matter what the exact symptoms or disease trajectory are. What matters is the shared understanding that your dreams as a parent have forever shifted.”
– quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
In addition to being (what I would consider) a “liminal day,” February 28th can also be a “rare” day. Typically, when we think of a “rare” day on the Gregorian and Julian calendars, we think of February 29th, Leap Day, which is rare because it only happens every four years.** Leap day is the perfect day for Rare Disease Day, which is observed on February 28th during non-leap years like 2023. Observations on this alternate date, coincide with the anniversary of the United States House of Representatives passing the Orphan Drug Act of 1983 on February 28, 1982. The act went into effect on January 4, 1983, and it facilitated the development of “orphan drugs” (i.e., drugs for rare diseases and disorders). Japan and the European Union enacted similar acts in 1993 and 2000, respectively. Prior to the act being passed in the U. S., less than 40 drugs had been approved as treatments for rare diseases and disorders (in the whole history of the United States). In the three decades after the act went into affect, almost ten times as many drugs had been approved.
Why the difference? Why did it take an act of Congress?
Unfortunately for those who face life-threatening and life-changing diseases, research is primarily driven by pharmaceutical companies, which are mostly driven by profits – and there’s just not a lot of profit in rare diseases.
“That referral led us to the geneticist, who ended up delivering the information that changed our lives.
‘Dalia tested positive for a genetic mutation that’s associated with myoclonic epilepsy with ragged red fibers, or MERRF syndrome ― an extremely rare form of mitochondrial disease,’ the doctor said.”
– quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
Approximately 300 million people are living with a rare disease. That doesn’t sound very rare when you add in their family, friends, and caregivers. But, here’s the thing: those 300 million people are not living with the same disease. They are not even living with the same two or three diseases. In the medical community, a “rare disease” is typically defined as a disease that affects fewer than 1 in 2,000 people. That means it can affect one or two people, or several hundred around the world. In the United States, Huntington’s disease; myoclonus; Amyotrophic lateral sclerosis (ALS) – also known as motor neuron disease (MND); Tourette syndrome; muscular dystrophy; Postural Orthostatic Tachycardia Syndrome (POTS); Prader-Willi syndrome; and Usher syndrome are all considered rare diseases or rare disorders. Sickle cell anemia is also considered a rare disease; even though it affects approximately 100,000 people in the United States. Autosomal systemic lupus erythematosus, which is characterized by the presence of (the more common) systemic lupus erythematosus symptoms in two or more members of a single family, is also considered a rare disease.
Approximately 72 – 80% of rare diseases are known to be genetic. About 70% begin in childhood. Tragically, thirty percent of children diagnosis with a rare disease will not reach age 5. While some people have diseases that are degenerative, some people “outgrow” their disease. Another challenge, for people suffering from rare diseases and disorders, is that sometimes people can be suffering with “invisible” ailments – meaning that others perceive them as healthy. All of these differences in symptoms and situations makes it really hard to receive diagnosis and treatment – especially since healthcare practitioners (particularly here in the West) are taught to “lookfor horses, notzebras.” Unfortunately, rare diseases are really colorful zebras. They require patients and their family and friends to take on all the roles normally distributed between professionals.
Recently, another couple of layers have been added to the already complicated story of rare diseases. For a variety of really disturbing reasons – that I want to believe come from a lack of awareness and knowledge – people have started co-opting orphan drugs and using them for non-life threatening issues. In some cases, they are being used for purely cosmetic purposes without any regard for the people whose lives actually depend on the medication. (NOTE: This is also happening with treatments for “common diseases,” with equally devastating effects; however, those common diseases get more publicity, because they make up a larger share of the market.) On the flip side, COVID seems to have created a situation where some rare diseases are becoming more common – which means, as twisted as sounds, that some people feeling more hopefully, because more research and development is being done with regard to their ailment.
Again, it all comes down to awareness, education, perspective, compassion, and empathy. Which is the whole point of Rare Disease Day.
Established in 2008, by the European Organization for Rare Diseases, Rare Disease Day is a day dedicated to “raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and [caregivers].” The 2023 theme is “ShareYourColours” – which is an invitation to share your story. Whether you have a rare disease or whether you love and/or care for someone with a rare disease, sharing your story can be a way to raise awareness, stop the ignorance, and end stigma.
If you are not dealing with a rare disease, be open to hearing other people’s stories. As rare as they are, I have known someone dealing with almost all of the rare diseases and disorders that I used as examples (above). Or, I should say, I’ve known that I knew them, because they shared their stories. Listening, as Bruce Kramer pointed out, opens us “… a little bit more.”
“To be open is to embrace your own great big messy humanity, to cry in sadness but not despair, to recognize presence in the emptiness of the bitter moment of truth, to be afraid but not fearful. Dis ease presents the choice of being open or closed, and opening to her lessons, her gifts, her challenges, is not easy. But dis ease clarifies vision, bringing sight to the blindness of what you thought you knew about living, light to the darkness of cynicism that life’s grief piled upon itself can foster. I know ALS is a horror, yet when fully embraced, it has taught me, it has revealed to me pure unsullied, uncontaminated, unbelievable love.
In my heart of hearts, I know that love never dies.”
– quoted from “25. Faith, Part IV: What’s Love Got To Do with It?” in We Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
Tuesday’s playlist is available on YouTube and Spotify. [Look for “06142020 World Blood Donor Day”]
NOTE: Not all rare diseases are blood-based, but the playlist contains a blood-borne subliminal message.
*NOTE: A follow-up article by Jessica Fein was also published by Huffington Post today, February 28, 2023.
**NOTE:According to the Julian calendar, Leap Year is every four years.On the Gregorian calendar, which is used by most people who will come across this post, it’s not that simple.
“A year is a leap year if it is divisible by 4 and is not a century year (multiple of 100) or if it is divisible by 400. For example, 1900 is not a leap year; 2000 is.”
– quoted from “2 – The Gregorian Calendar, 2.1: Structure” in Calendrical Calculations by Nachum Dershowitz, Edward Reingold
This is the “missing” post for Wednesday, October 20th.You can request an audio recording of either practice via a comment belowor (for a slightly faster reply) you can email me at myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.
“When the bones are good, the rest don’t matter Yeah, the paint could peel, the glass could shatter Let it break ’cause you and I remain the same When there ain’t a crack in the foundation Baby, I know any storm we’re facing Will blow right over while we stay put The house don’t fall when the bones are good”
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– quoted from the song “The Bones” by Maren Morris
Unless something goes wrong, our bones are something we very rarely talk about. Sure, when I taught Yin Yoga on a regular basis, my quick-and-dirty explanation for the different engagement was that in vinyasa and other weight-bearing exercises, we are typically squeezing our muscle and skin into the bones, while with Yin Yoga (and Restorative) we want the muscle and skin to melt away from the bones. However, that’s not even completely accurate. While we do squeeze the muscle (and the skin) into the bones in order to move the bones, once we are holding a pose, proper alignment can give us an opportunity to relax some of the muscle and skin. Also, I’ve done some special events where I talk about “Dem Bones” – referencing the way our bones are connected and the song (which, by the way, is virtually impossible to add to a playlist) – but, even then, I wasn’t talking about bone health. All that changed today; because today (October 20th) was World Osteoporosis Day.
Originally conceived in 1996, by the United Kingdom’s Osteoporosis Society (and supported by the European Commission), World Osteoporosis Day has been organized by the International Osteoporosis Foundation (IOF) since 1997, and recognized by the World Health Organization since 1998. It is a day dedicated to “raising global awareness of the prevention, diagnosis and treatment of osteoporosis and metabolic bone disease.” This year’s theme is “Serve Up Bone Strength” and there will be a year-long campaign centered around taking care of and protecting the muscles and bones. Of course, the campaign centers around education and awareness about the importance of bone health and what we can do – at any age or ability – to promote it.
“Those who practice yoga say it is life changing. Those of us who are as flexible as a piece of lumbar are not so sure. I admire yoga’s rich history, more than five thousand years old, but I run into a few mental roadblocks in understanding concepts like grounding and spinal energy. In fact, I was sitting in my slumped-over and crooked version of the lotus position during a special yoga class taught by Bruce’s mentor Matthew Sanford, when Matthew said to a student, ‘Breathe into your spine for God’s sake!’ I had no idea what that meant. The student understood though, and he made proper adjustments. What was remarkable was that both teacher and student were in wheelchairs.”
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– quoted from “24. Dis Ease Yoga” in When Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
The word “osteoporosis” comes from Greek words meaning “bone” and “passage” or “pore.” The condition causes bones to weaken form the inside out and become so fragile that the simplest things can can cause the bones to break or fracture. By “the simplest things,” I mean that someone with osteoporosis can suffer a break or a fracture when they sneeze, make a sudden movement, bump up against something, and/or experience a a minor fall or stumble. Sure, we may think about someone breaking a bone when they have a major fall; but, if your bones are brittle, even stubbing your toe on something and then catching yourself before you tumble to the ground can result in a severe injure. Keep in mind, also, that a minor fracture when you have healthy bones may or may not be a big deal. However, osteoporosis-related fractures can be life-threatening and are a major cause of pain and long-term disability.
According to the World Osteoporosis Day website, 1 in 3 women and 1 in 5 men, age 50 years or older, will suffer an osteoporotic fracture. That works out to millions and millions of people – many of whom will not seek treatment. Additionally, statistics indicate that only about 20% of people with osteoporotic fractures are actually treated for osteoporosis. That translates into millions of people who may have a fracture or a break treated, but remain at high risk for more fractures and more breaks – and that can translate into a major drain on the healthcare system.
The older we get, the more likely we are to fall and there is sometimes a tendency to handle our bones with care. But, sometimes we go to far in our efforts to protect ourselves and actually create more risk. The human body is designed to move and to stay mobile. Consider the fact that even when we are not moving on the outside, there are lots of things inside of us that are in constant motion. For example, the spine reacts to breathing unless something gets in the way. There’s a micro-extension when we inhale and a little bit of flexion when we exhale. This little bit of movement is one of the ways the spine stays healthy and balanced and one of the ways it supports us and our nervous system. Take away that little bit of movement and we’ve got some problems.
“Jo and I discovered that alignment and precision increase mind-body integration regardless of paralysis. The mind is not strictly confined to a neurophysiological connection with the body. If I listen inwardly to my whole experience (both my mind’s and my body’s), my mind can feel my legs.
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This is one of those truths that is easy to pass by, like the existence of dinosaurs. But in fact, it should dumbfound us – that, on some level, something as simple as the more precise distribution of gravity can transcend the limits set by a dysfunctional spinal cord. When I move from a slumped position to a more aligned one, my mind becomes more present in my thighs and feet. This happens despite my paralysis. It is simply a matter of learning to listen to a different level of presence, to realizing that the silence within my paralysis is not loss. In fact, it is both awake and alive.”
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– quoted from “14. Maha Mudra” in Waking: A Memoir of Trauma and Transcendence by Matthew Sanford
A few years ago, one of my yoga-buddies, Sister Karen, forwarded me an article about studies showing that some asanas and some styles of yoga are good for bone health. Since she and some of the other people in her community are of an age where they are thinking about their bone-density, she wanted to know what I would recommend. As it turned out, the article mentioned poses that we do in almost every vinyasa practice. In fact, a typical vinyasa practice is a weight-bearing practice. Like walking, another great weight-bearing exercise for the bones, it usually includes a little balance – even when you don’t realize you’re balancing.
Remember, whenever you take a step, there is a moment when you are balancing on one foot. We may not think very much of it when we are in the prime of our lives; however, being able to stand on one foot (and then hop on one foot) is an important marker in child development. A toddler has to be able to stand on one foot in order to…well, toddle. By age 5 or 6, a neurotypical child should be able to balance on one foot for about 10 seconds; jump up and land with both feet; jump over an object that is 10 inches high; hop on one foot for about 20 feet (or more); and skip. Keep in mind “normal” falls on a spectrum when it comes to child development there’s no hard-and-fast timeline in terms of when a child goes from balancing on one foot for 4 seconds to balancing on one foot for 20 seconds (which is a marker for someone who is 7 years old). Similarly, some kids will walk on their tiptoes long enough for it to be recognized as a balancing marker, while others will not be super invested in that experience.
The body’s ability to balance is based on continuous communication and coordination between the brain, the inner ear, eyes, muscles, and joints. These parts of our overall system, and the communication between them, make up our proprioception and vestibular systems. Proprioception is how the brain uses the muscle and joints to find the body in space. The vestibular system – sometimes called the balance center – combines that awareness of the body’s position (in reference to the elements around it) with information about speed of motion (acceleration and deceleration) that is transmitted through the inner ear and eyes. This speed of motion information is largely based on the position of the head. Change one element and we wobble, maybe even fall.
– quoted from the song “Free Fallin'” by Tom Petty (b. 10/20/1950)
The IOF recommends the following five tips or steps to healthy bones and a fracture-free future:
EXERCISE:Exercise regularly to keep your bones and muscles moving. For bone health, focus on weight-bearing, muscle-strengthening, and balance-training exercises.
NUTRITION: Ensure your diet is rich in bone-healthy nutrients like calcium, vitamin D, and protein. You can combine these first two elements by talking a walk (or run) outside in order to absorb a little vitamin D through safe exposure to the sun.
LIFESTYLE: Avoid negative lifestyle habits by maintaining a healthy weight and avoiding smoking and excessive amounts of alcohol.
RISK FACTORS:Some bone issues are genetic; so, make sure you know your family history and talk to your health care practitioner about any old fractures or bone pain. Also, talk to your health care provider about any medication that might affect your bone health.
TESTING & TREATMENT: One of the big activities around World Osteoporosis Day is bone-strength testing for people 40 years or older and people in other high risk groups. Lifestyle changes and/or medication can help protect your bones. Furthermore, the earlier osteoporosis is detected, the effectively it can be treated.
Remember, in American English “bad” has two meanings. Take a moment to consider what you can do so that you are “bad to the bone” in a way that is “even better than good,” rather than in a way that means your bones are “horrible” or “of quality.”
“I’m here to tell ya honey That I’m bad to the bone Bad to the bone B-B-B-B-Bad B-B-B-Bad B-B-B-Bad (Hoo) bad to the bone”
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– quoted from the song “Bad to the Bone” by George Thorogood & The Destroyers
Wednesday’s playlist is available on YouTube and Spotify.
“‘Cause these dry-dry bones gonna rise up, gonna rise up
Gonna rise up, gonna rise up Gonna rise up, gonna rise up Gonna rise up
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Take my hand let it set you free Keep working on your destiny There’s healing in the air, get touched Can you feel it ’cause the message is love”
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– quoted from the song “Dry Bones” by Gregory Porter
A Joyful Practice 