Many blessings to everyone and especially to anyone exerting their will to cultivate friendship, peace, freedom, understanding, and wisdom.
This “missing” compilation post for Sunday, October 5th, features “remixed” excerpts. You can request an audio recording of this practice via a comment below or (for a slightly faster reply) you can email myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es).
Donations are tax deductible; class purchases are not necessarily deductible.
“See the moon roll across the stars See the seasons turn like a heart Your father’s days are lost to you This is your time here to do what you will do
Your life is now, your life is now, your life is now In this undiscovered moment Lift your head up above the crowd”
— quoted from the song “Your Life Is Now” by John Mellencamp (written by John Mellencamp, George Michael Green)
Time. It is such an arbitrary concept. I mean, we are passing the time every time we inhale; measuring time every time we exhale. However, our experience of time is often based on our perspective. For instance, how long a road trip — or a flight to the other side of the planet — is versus how long it feels can be different and how long it feels can be different if you are by a window, enjoying the view, versus if you really have to go to the bathroom when there’s no place to go. Similarly, if you are having a good time, that time feels different than if you are having a challenging time; just like time seems to move at a different pace when you are looking forward to something versus when you are dreading something — keeping in mind that the “something” in either case may never happen.
Now, you may be thinking that one’s subjective experience of time does not make the concept of time arbitrary. Well, yes and no. Yes, it is true that, as a society, we have agreed on ways we will measure time so that we all show up at the same time and/or do certain things at certain times. However, the systems established were, initially, based on one person’s (or one group of people’s) whims. In other words, arbitrary.
For example, nothing happened today in 1582 — at least not in Italy, Spain, Portugal, France, and places like the Polish-Lithuanian Commonwealth. These Papal-governed nations were the first to switch from the Julian calendar to the Gregorian calendar and, in order to make the timing work, they skipped 10 days (October 5 — 14). One of the motivating factors for the switch was to use a system of time named for a pope (in this case, Pope Gregory XIII) rather than a Roman emperor (i.e., Julius Caesar). Another factor was that the church wanted more consistency and control over when Easter (and other religious holidays) were celebrated as Catholicism spread beyond Rome.
Where there other factors? Sure. However, the idea for a standardized date for Easter dates back to the First Council of Nicaea (in 325 AD); the need for calendar reform — to produce a more astrologically accurate calendar — dates back to the 8th century; and calendar reform — to produce a more liturgically consistent calendar — was proposed as early as 1475 AD.
Because it is in such common use as a civil calendar (and, therefore, used by people who are not Christian), we don’t typically think of the Gregorian calendar as a religious calendar. However, it is not the only religious calendar used in modern times. Some Christians (and non-Christians) still use the Julian calendar. Others use solar, lunar, lunisolar (sometimes called solilunar) and/or seasonal calendars. All these different calendars can overlap and coincide in different ways in any given year — meaning that holidays overlap and coincide in different ways every year.
“Before you were formed in the womb, your days were numbered and set in place. They are the chapters of the lessons you came here to learn, the faces of the wisdom this world has to teach you, the gateways to the treasures this lifetime alone can bestow.”
— quoted from Hayom Yom, 17 Cheshvan; Naso 5837:6 (From the wisdom of the Lubavitcher Rebbe, of righteous memory, words and condensation by Rabbi Tzvi Freeman)
When it comes to this time that (quote-unquote) “didn’t exist” as some people were switching over to the Gregorian calendar in 1582, the days that were skipped didn’t actually disappear. In reality, they were still there; just renamed / renumbered. This “deletion of days” would occur at different times throughout the year and over the years — even as recently as 2016. As the drift continued for countries still using the Julian calendar, sometimes as many as 14 days needed to be skipped.
We can think of these dates as liminal days, threshold days, or transitional days — especially when they pop up during the High Holidays or (as they do this year) in between holidays. However, whenever these dates pop up on our current calendar, I like to think of them as “extra days”, like a little bit of lagniappe that we’ve been given. And, of course, I ask the question, “How could I spend this extra bit of time?”
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
— quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
Sunday’s playlist is available on YouTube and Spotify. [Look for “10052021 A Matter of Time”]
“A day enters, opens its doors, tells its story, and then returns above, never to visit again. Never—for no two days of your life will share the same wisdom.”
— quoted from Hayom Yom, 17 Cheshvan; Naso 5837:6 (From the wisdom of the Lubavitcher Rebbe, of righteous memory, words and condensation by Rabbi Tzvi Freeman)
If you are thinking about suicide, worried about a friend or loved one, or would like emotional support, you can dial 988 (in the US) or call 1-800-273-TALK (8255) for the Suicide and Crisis Lifeline. You can also call this TALK line if you are struggling with addiction or involved in an abusive relationship. The Lifeline network is free, confidential, and available to all 24/7. YOU CAN TALK ABOUT ANYTHING.
White Flag is an app, which I have not yet researched, but which may be helpful if you need peer-to-peer (non-professional) support.
“L’Shana Tovah U’Metukah!” to everyone celebrating Rosh Hashanah and the High Holidays. “Nine days and nine nights of blessings and happiness if you are celebrating Sharada Navaratri!” Many blessings to everyone and especially to anyone cultivating friendship, peace, freedom, understanding, and wisdom during the Equinox and International Week of Deaf People.
Stay safe! Live well! Hydrate and nourish your heart, body, and mind.
This post-practice post for Monday, September 22nd, is a compilation post, which includes some new and previously posted content, plus a series of excerpts. Please note that linked excerpts direct you to posts that will include content related to a specific year. The 2025 prompt question was, “How do you get ready for something big, for something momentous, for something auspicious?”You can request an audio recording of this practice or a previous practice via a comment below or (for a slightly faster reply) you can email myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es).
Donations are tax deductible; class purchases are not necessarily deductible.
“Those Samâdhis with which we ended our last chapter are very difficult to attain; so we must take them up slowly. The first step, the preliminary step, is called Kriya-yoga. Literally this means work, working towards Yoga.”
— quoted from the commentary on Yoga Sūtra 2.1, from Raja Yoga by Swami Vivekananda
When you first consider the Monday prompt question, you may think that the answer depends on what you’re getting ready to do. However, I would argue that such an answer is related to the finer details of your life. If you take in the big picture, you will notice that we usually get ready for something big by taking a moment to look back and make sure we have all our ducks in a row. In other words, we reflect and we make a plan — even if that plan is just related to what we are going to wear or how we want our house to look when company comes over. In the process, we also make sure our head and heart are in the right place; that we have an attitude that is going to serve us.
In some ways, the general process we use to get ready is one way to look at the process Patanjali described as kriyā yoga (“yoga in action”): a combination of tapah (“heat, discipline, austerity” and the practices that cultivate them — physically, mentally, emotionally, even spiritually and religiously), svādhyāya (“self-study”), and īśvarapraņidhāna (“trustful surrender to [God]”). (YS 1.2) I reference this rubric throughout the year, because it is not only a process we can use individually, it is also a process that communities use when they are getting ready for a big, momentous, auspicious time… like a new season and/or a new year.
The new moon on Sunday was actually the precursor all of the above since Monday was the Autumnal Equinox in the Northern Hemisphere (or Spring/Vernal Equinox in the Southern Hemisphere); the beginning of Sharada Navaratri in some Hindu communities; and the beginning of the International Week of the Deaf People. Additionally, Monday at sunset marked the beginning of Rosh Hashanah in Jewish communities around the world (and in communities where people observe the commanded holidays outlined in Deuteronomy).
THE EQUINOX EXCERPTS — “On Having A Good Time” (revised):
“The transition from one year to the next year happens in an infinitely short moment that is actually non-existent in time. So too, there are transitions in the moments of life and the moments of meditation. Mindfulness of transitions in daily life and during meditation time is extremely useful on the spiritual journey to enlightenment.”
— quoted from the commentary on “Yoga Sutras 3.9-3.16: Witnessing Subtle Transitions With Samyama” by Swami Jnaneshvara Bharati (“Swami J”)
In theory, the angle of the Earth combines with its rotation around the sun to produce four noteworthy (and marked) dates: Autumnal Equinox, Winter Solstice, Vernal (or Spring) Equinox, and Summer Solstice.
I say, “in theory”, because we like to think that everyone around the world has equal amounts of day and night on the equinox and that these appreciable moments in time are actually that — appreciable and notable. The truth, however, is that there is no sudden/automatic change in how much light and how much darkness we get. It’s not a dimmer switch and we can honestly notice changes much earlier than indicated by the celestial calendar. Furthermore, no one is really getting 12 hours of daylight and 12 hours of night on the actual equinox. We perceive daylight long after the sun has moved below the horizon and, therefore, daytime is longer at latitudes above the equator than below.
Here in Houston, we got 12 hours and 10 minutes (as did people in Cairo, Egypt; with people in Shanghai, China maybe getting 1 more minute than that). On the flip side, someone in Anchorage, Alaska got 12 hours and 17 minutes and people in Helsinki, Finland got 12 hours and 19 minutes). Meanwhile, people in Cape Town, South Africa; Sydney, New South Wales, Australia; and Auckland (Tāmaki Makaurau) on Te Ika-a-Māui/North Island of Aotearoa/New Zealand all got 12 hours and 9 minutes.
Even at the equator, a true 12-hour split doesn’t happen on the equinox (“equal night”): It happens on the equilux (“equal light”), which falls on Thursday, September 25th. for most mid-latitude people in the Northern Hemisphere. (Although the exact date does vary by location.)
Click on the excerpt title below for more about how you could spend your time.
THE NAVARATRI EXCERPT — “Making Connections, Part 2 [in the New Year] Part 2” (revised):
Navaratri (which means “nine nights”, in Sanskrit) occurs four times on the Hindu calendar and is a celebration of divine feminine energy — specifically of Durga, the divine mother, in various manifestations. Some people (read, mostly men) think of these manifestations as different women. Others (read, mostly women) recognize these manifestations as the same woman at different points in her life. The latter understanding is underscored by the fact that each day is dedicated to a different manifestation of Durga/Parvati and each manifestation marks a different point in Her journey.
Navaratri always begins by celebrating Durga as Shailaputri (“Daughter of Mountain”). Shailaputri is the daughter of Himavat, the Mountain King or Guardian God of Himalayan Mountains, and is recognized as a divine manifestation of Mahadevi and a reincarnation of Sati (the wife of Shiva), who then reincarnates as Parvati. In art, she holds a trishula or trident in her right hand and a lotus in her left hand, all while riding Shiva’s bull Nandi, whose name means “happy, joy, and satisfaction”.
The fall (Sharada) Navaratri celebration, which started today (Monday), is the biggest and most celebrated of the four celebrations. Rituals and traditions vary from one region to the other and, during this festival, celebrations in some regions may include other manifestations of the Divine. For example, while some celebrations on the ninth day of Navaratri will also be Ayudha Puja (“worship of tools”) — when people celebrate peace and knowledge and give thanks for the tools of their occupation, some will give thanks for musical instruments and others will give thanks for their farming machinery. At the same time, some will make their puja (“offering”) to Saraswati — who is associated with knowledge, the arts, and culture, etc. — and others will direct their attention to Lakshmi — who is associated with prosperity, wealth, and fertility, etc. These fall celebrations also include a tenth day, Dussehra or Vijayadashami, which commemorates Lord Rama’s victory over a 10-headed demon.
THE INTERNATIONAL WEEK OF THE DEAF EXCERPTS — “Paying Attention is the First Step” & “Holchaj yIjatlh. (‘Speak in their language.’)” (revised):
“…people meet and part. The word becomes the action in this language of the heart.”
— quoted from the English translation of the poem “Language for the Eye” by Dorothy Miles
Today, September 22nd, the beginning of International Week of Deaf People (IWDP). While IWDP is celebrated during the last full week of September (and therefore the dates shift a little), International Day of Sign Languages (IDSL) is held annually on September 23rd, the anniversary of the day, in 1951, when the World Federation of the Deaf (WFD) was established in Rome, Italy, during the first World Deaf Conference. That first conference was organized by Ente Nazionale Sordomuti (ENS), the Italian Deaf Association, and attended by representatives from 25 countries. Now, WFD is an international non-profit and non-governmental organization of deaf associations from 133 countries. It promotes the human rights of deaf people worldwide and works with the United Nations (UN) General Assembly and UN agencies like the World Health Organization (WHO).
Each day of IWDP has a different focus. The 2025 theme for the entire week is “No Human Rights Without Sign Language Rights” and the focus on Monday was “Deaf communities leading”. Both themes highlight the importance of including people in conversations about things (like social policy) that will affect them and emphasizes the fact that, “Deaf-led alliances, in collaboration with governments and other organisations, play a vital role in advancing sign language rights. Following the motto ‘nothing about us without us’, true progress comes from partnerships where deaf people lead and others support them as committed allies.”
Since we are heading into a New Year, you might spend your time by learning a new language.
There are, in fact, about 300 sign languages used around the world. This includes some (but not all) language families, like the French Sign Language Family, and the languages therein — like French Sign Language, Italian Sign Language, Quebec Sign Language, American Sign Language, Irish Sign Language, Russian Sign Language, Dutch Sign Language (NGT), Spanish Sign Language, Mexican Sign Language, Brazilian Sign Language (LIBRAS), Catalan Sign Language, Ukrainian Sign Language, Austrian Sign Language (along with its twin Hungarian Sign Language and its offspring Czech Sign Language) and others. That estimate also includes some (but not all) dialects and some village languages, as well as some Deaf-community and school languages. I am not sure if that estimate includes any speech-taboo languages1; but, suffice to say, there are a lot of sign languages. And, knowing one does not mean that you can use the other; any more than knowing one romance language means you can completely understand another.
THE NEW YEAR EXCERPT — “An Invitation to ‘Reflecting, Remembering, Repenting, & Planting’” (revised):
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
— quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
This is a liminal moment — a transitional or threshold moment, a doorway in between moments; like the pauses in between the inhale and the exhale. As I have mentioned before, we could say that about any moment in our lives; however, this is one of those Liminal moments that is being recognized as an auspicious time by several communities around the world. This is one of those moments full of ceremony, ritual, and tradition.
It is an opportunity to “request” (or accept) and plan for more time.
“Who will be calm and who will be tormented?
Who will become poor and who will get rich?
Who will be made humble and who will be raised up?
But teshuvah and tefillah and tzedakah [repentance and prayer and righteous acts]
deflect the evil of the decree.”
— quoted from the poem “Unetaneh Tokef” (“Let Us Speak of the Awesomeness”)
Literally “the Head of the Year”, Rosh Hashanah is known as the Jewish New Year and is also the beginning of the High Holidays — known as the “Ten Days of Atonement” and the “Ten Days of Awe” — which culminate with Yom Kippur, “The Day of Atonement”. It is one of the holiest times of the year for some and is celebrated by people who might not typically go to services. Unlike a secular new year, it is more than a celebration — it is an observation: a time for reflection, remembrance, and repentance.
It is also a time when people “request” (or accept) and plan for a new year of life and purpose.
There is no playlist for the Common Ground Meditation Center practices.
Music Note: You can click on the excerpt title above for the playlists featuring the poem I mentioned during the Monday practice.
If you are thinking about suicide, worried about a friend or loved one, or would like emotional support, you can dial 988 (in the US) or call 1-800-273-TALK (8255)for the Suicide and Crisis Lifeline. You can also call this TALK line if you are struggling with addiction or involved in an abusive relationship. The Lifeline network is free, confidential, and available to all 24/7. YOU CAN TALK ABOUT ANYTHING.
White Flag is an app, which I have not yet researched, but which may be helpful if you need (non-professional) support.
“L’Shana Tovah U’Metukah!” to everyone celebrating Rosh Hashanah and the High Holidays. “Nine days and nine nights of blessings and happiness if you are celebrating Sharada Navaratri!” Many blessings to everyone and especially to anyone cultivating friendship, peace, freedom, understanding, and wisdom.
Stay safe! Live well! Hydrate and nourish your heart, body, and mind.
This is the “missing” invitation for the “First Friday Night Special” on October 4th.It includes a related excerpt and some previously posted content. You can request an audio recording of this Restorative Yoga practice via a comment below or (for a slightly faster reply) you can email myra(at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es).
Donations are tax deductible; class purchases are not necessarily deductible.
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
— quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
This is a liminal moment — a transitional or threshold moment, a doorway in between moments; like the pauses in between the inhale and the exhale. As I have mentioned before, we could say that about any moment in our lives; however, this is one of those Liminal moments that is being recognized as an auspicious time by several communities around the world. This is one of those moments full of ceremony, ritual, and tradition.
In addition to being a sacred time in several religious communities, this is also the anniversary of a liminal time. October 4, 1582, was the last day that Italy, Spain, Portugal, France, and places like the Polish-Lithuanian Commonwealth used the Julian calendar. In order to transition to the (new) Gregorian calendar, Papal-governed countries had to skip 10 days (October 5 — 14). It was almost as if they never existed and would never exist. Sure, they were just rebranded; but, this day, as well as those missing days (that pop up at different times in other countries), serve as a reminder that this present moment is the only one we are promised.
But, what if we were given the opportunity to “request” (or accept) and plan for more time?
“Who will be calm and who will be tormented?
Who will become poor and who will get rich?
Who will be made humble and who will be raised up?
But teshuvah and tefillah and tzedakah [repentance and prayer and righteous acts]
deflect the evil of the decree.”
— quoted from the poem “Unetaneh Tokef” (“Let Us Speak of the Awesomeness”)
For some, the opportunity to request (or accept) more time started at sunset on Wednesday, which marked the beginning of Rosh Hashanah in Jewish communities around the world (and in communities where people observe the commanded holidays outlined in Deuteronomy). Literally “the Head of the Year,” the beginning of this New Year is also the beginning of the High Holidays — known as the “Ten Days of Atonement” and the “Ten Days of Awe” — which culminate with Yom Kippur, “The Day of Atonement.” It is one of the holiest times of the year for some and is celebrated by people who might not typically go to services. Unlike a secular new year, it is more than a celebration — it is an observation: a time for reflection, remembrance, and repentance.
It is also a time when people “request” (or accept) and plan for more time.
Click on the excerpt title below for more (including a preview of the Saturday practice).
“While this may sound like an extreme–and even scary–story, I don’t see it as the tale of a goddess who gave up everything to marry a god. Instead, I understand it as the story of a Truth seeker who gave up all distractions to merge with the ultimate Truth.”
— quoted from the “Knowing BRAHMACHARINI” section of “Chapter 2: Channeling Your Energy — Channeling Your Energy (when you’re feeling excited) with Goddess Brahmacharini, the one who follows brahmacharya (the path of self-control)” in The Way of the Goddess: Daily Rituals To Awaken Your Inner Warrior And Discover Your True Self by Ananta Ripa Ajmera
Thursday was the beginning of Sharada Navaratri, the most celebrated of the four Navaratri festivals. Navaratri literally means “nine nights” and is a Hindu celebration of God / the Divine as a woman. Each day is dedicated to a different manifestation of Durga/Parvati and each manifestation marks a different point in Her journey. Friday, the second day, is dedicated to the Goddess Brahmacharini (“Unmarried One”), who is also Yogini. Both of her names highlight her path.
A yogini is a woman who practices yoga. Brahmacharini shares a root with the fourth yama (external “restraint” or universal commandment), brahmacharya, which can be translated as following in the steps of God or “chasing God” — or even that the devotee is riding in God’s “chariot.” All of these translations are associated with the life someone who is deeply invested in their religious and spiritual life. In art, Brahmacharini has all the symbols of an ascetic: bare feet, a mala (rosary) and a kamandalu (water pot). People consider her a symbol of bliss and calmness and pray to her for moksha (“liberation” from suffering), peace, and prosperity.
People also believe Brahmacharini can endow them with strong concentration and self-control. In fact, her story is full of the great challenges associated with the austerity she practices in order to achieve her goal of marriage. To me, she, herself, is liminal in that she is the embodiment of the auspicious moment between the goddess being identified as a daughter and the goddess being identified as a wife.
“The story of Brahmacharini and Shiva is not meant to be the story of a romantic relationship; Shiva is merely symbolic of the true Self. He is pure consciousness, the eternal soul, which we strive to merge with vis–à–vis the power of spiritual practice.”
— quoted from the “Knowing BRAHMACHARINI” section of “Chapter 2: Channeling Your Energy — Channeling Your Energy (when you’re feeling excited) with Goddess Brahmacharini, the one who follows brahmacharya (the path of self-control)” in The Way of the Goddess: Daily Rituals To Awaken Your Inner Warrior And Discover Your True Self by Ananta Ripa Ajmera
Each and every person on the planet (or a space station) “contain[s] multitudes” and experiences different seasons of life. At different stages in our lives, we are recognized in different ways. At different times in our lives we fulfill different roles. Each season and each role comes with different responsibilities and expectations, as well as with different skills, abilities, experiences, and powers.
Take a moment to recognize the path you are on; the journey that is your life; the season you are in; the roles you play; and the way you serve the world.
Take a moment to acknowledge that you can simultaneously experience excitement, anticipation, doubt, fear, hesitation, and joy every time you experience change.
Take a moment to do what you need to do to grieve and appreciate what is no longer and, also, to appreciate what is not yet — knowing that what is not yet is a possibility that could be or might never be.
Take a moment to remember that you and the things you do have meaning and are valuable.
Now, take a breath, exhale, and begin.
“So I draw courage and stand face-to-face with my limitations, without shrinking or running. I allow for honest remorse. Here is my place of Now….
Of course, acceptance does not mean becoming complacent. I still need to honestly evaluate my life and reflect on how I want to act differently this coming year. It also doesn’t preclude trying my best.
But at this very moment my state of ‘now’ is my truth.”
— quoted from an article entitled “Perfectly Imperfect: The Secret of the Shofar” (09/12/2020) by Rabbi Binyomin Weisz
The October First Friday Night Special features Restorative Yoga (with some gentle movement). It is accessible and open to all.
(NOTE: There will be a little bit of quiet space in this practice.)
Prop wise, this can be a kitchen sink practice. You can practice without props or use “studio” props and/or “householder” props. Example of Commercial props: 1 – 2 blankets, 2 – 3 blocks, a bolster, a strap, and an eye pillow. Example of Householder props: 1 – 2 blankets or bath towels, 2 – 3 books (similar in size), 2 standard pillows (or 1 body pillow), a belt/tie/sash, and a face towel. A water bottle can be used if a ball is not handy.
You may want extra layers (as your body may cool down during this practice). Having a wall, chair, sofa, or coffee table may be handy for this practice.
NOTE: The playlist tracks are slightly different in length and duration.
If you are thinking about suicide, worried about a friend or loved one, or would like emotional support, you can dial 988 (in the US) or call 1-800-273-TALK (8255)for the Suicide and Crisis Lifeline. You can also call this TALK line if you are struggling with addiction or involved in an abusive relationship. The Lifeline network is free, confidential, and available to all 24/7. YOU CAN TALK ABOUT ANYTHING.
White Flag is a new app, which I have not yet researched, but which may be helpful if you need peer-to-peer (non-professional) support.
Many blessings to all,and especially to those observing Lent, Ayyám-i-Há,and/or Rare Disease Dayduring this “Season for Nonviolence” and all other seasons!
This is theabridged version ofa 2023 postrelated to February 29th(which was original posted with information from yesterday’s post). Some context and links (including a video) have been added/updated. There’s no practice today; however, you can request an audio recording of a previous practice via a comment below or (for a slightly faster reply) you can email me at myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)
“That’s the thing about a rare disease. You fight for a diagnosis for years ― on average, according to Global Genes, it takes seeing 7.3 physicians and trying for 4.8 years before getting an accurate rare disease diagnosis ― and then, even once you know, you must continue being a detective as you try to piece together the clues as to how the illness might progress. You become an expert in a disease you wish you’d never heard of.
As a parent, you also quickly morph into a nurse, therapist, chief operating officer, educational advocate, cheerleader and warrior. You feel alone, because by definition, your child’s diagnosis is exceptional. And yet, 1 in 10 Americans and 300 million people globally are living with a rare disease.
You find community not just in other people who share the specific diagnosis your family is facing, but in those struggling with any rare diagnosis. It doesn’t matter what the exact symptoms or disease trajectory are. What matters is the shared understanding that your dreams as a parent have forever shifted.”
— quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
In addition to being (what I would consider) a “liminal day,” February 28th can also be a “rare” day. Typically, when we think of a “rare” day on the Gregorian and Julian calendars, we think of February 29th, Leap Day, which is rare because it only happens every four years.** Leap day is the perfect day for Rare Disease Day, which is observed on February 28th during non-leap years like 2023. Observations on this alternate date, coincide with the anniversary of the United States House of Representatives passing the Orphan Drug Act of 1983 on February 28, 1982. The act went into effect on January 4, 1983, and it facilitated the development of “orphan drugs” (i.e., drugs for rare diseases and disorders). Japan and the European Union enacted similar acts in 1993 and 2000, respectively. Prior to the act being passed in the U. S., less than 40 drugs had been approved as treatments for rare diseases and disorders (in the whole history of the United States). In the three decades after the act went into affect, almost ten times as many drugs had been approved.
Why the difference? Why did it take an act of Congress?
Unfortunately for those who face life-threatening and life-changing diseases, research is primarily driven by pharmaceutical companies, which are mostly driven by profits — and there’s just not a lot of profit in rare diseases.
“That referral led us to the geneticist, who ended up delivering the information that changed our lives.
‘Dalia tested positive for a genetic mutation that’s associated with myoclonic epilepsy with ragged red fibers, or MERRF syndrome ― an extremely rare form of mitochondrial disease,’ the doctor said.”
— quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
Approximately 300 million people are living with a rare disease. That doesn’t sound very rare when you add in their family, friends, and caregivers. But, here’s the thing: those 300 million people are not living with the same disease. They are not even living with the same two or three diseases. In the medical community, a “rare disease” is typically defined as a disease that affects fewer than 1 in 2,000 people. That means it can affect one or two people, or several hundred around the world. In the United States, Huntington’s disease; myoclonus; Amyotrophic lateral sclerosis (ALS) – also known as motor neuron disease (MND); Tourette syndrome; muscular dystrophy; Postural Orthostatic Tachycardia Syndrome (POTS); Prader-Willi syndrome; and Usher syndrome are all considered rare diseases or rare disorders. Sickle cell anemia is also considered a rare disease; even though it affects approximately 100,000 people in the United States. Autosomal systemic lupus erythematosus, which is characterized by the presence of (the more common) systemic lupus erythematosus symptoms in two or more members of a single family, is also considered a rare disease.
Approximately 72 — 80% of rare diseases are known to be genetic. About 70% begin in childhood. Tragically, thirty percent of children diagnosis with a rare disease will not reach age 5. While some people have diseases that are degenerative, some people “outgrow” their disease. Another challenge, for people suffering from rare diseases and disorders, is that sometimes people can be suffering with “invisible” ailments — meaning that others perceive them as healthy. All of these differences in symptoms and situations makes it really hard to receive diagnosis and treatment — especially since healthcare practitioners (particularly here in the West) are taught to “lookfor horses, notzebras.” Unfortunately, rare diseases are really colorful zebras. They require patients and their family and friends to take on all the roles normally distributed between professionals.
Recently, another couple of layers have been added to the already complicated story of rare diseases. For a variety of really disturbing reasons — that I want to believe come from a lack of awareness and knowledge — people have started co-opting orphan drugs and using them for non-life threatening issues. In some cases, they are being used for purely cosmetic purposes without any regard for the people whose lives actually depend on the medication. (NOTE: This is also happening with treatments for “common diseases,” with equally devastating effects; however, those common diseases get more publicity, because they make up a larger share of the market.) On the flip side, COVID seems to have created a situation where some rare diseases are becoming more common — which means, as twisted as sounds, that some people are feeling more hopefully, because more research and development is being done with regard to their ailment.
Again, it all comes down to awareness, education, perspective, compassion, and empathy. Which is the whole point of Rare Disease Day.
Established in 2008, by the European Organization for Rare Diseases, Rare Disease Day is a day dedicated to “raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and [caregivers].” The 2023 theme “ShareYourColours” is an invitation to share your story. Whether you have a rare disease or whether you love and/or care for someone with a rare disease, sharing your story can be a way to raise awareness, stop the ignorance, and end stigma.
If you are not dealing with a rare disease, be open to hearing other people’s stories. As rare as they are, I have known someone dealing with almost all of the rare diseases and disorders that I used as examples (above). Or, I should say, I’ve known that I knew them, because they shared their stories. Listening, as Bruce Kramer pointed out, opens us “… a little bit more.”
“To be open is to embrace your own great big messy humanity, to cry in sadness but not despair, to recognize presence in the emptiness of the bitter moment of truth, to be afraid but not fearful. Dis ease presents the choice of being open or closed, and opening to her lessons, her gifts, her challenges, is not easy. But dis ease clarifies vision, bringing sight to the blindness of what you thought you knew about living, light to the darkness of cynicism that life’s grief piled upon itself can foster. I know ALS is a horror, yet when fully embraced, it has taught me, it has revealed to me pure unsullied, uncontaminated, unbelievable love.
In my heart of hearts, I know that love never dies.”
— quoted from “25. Faith, Part IV: What’s Love Got To Do with It?” in We Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
The 2023 playlist is available on YouTube and Spotify. [Look for “06142020 World Blood Donor Day”]
NOTE: Not all rare diseases are blood-based, but the playlist contains a blood-borne subliminal message.
*NOTE: A follow-up article by Jessica Fein was also published by Huffington Post [on] February 28, 2023.
**NOTE:According to the Julian calendar, Leap Year is every four years.On the Gregorian calendar, which is used by most people who will come across this post, it’s not that simple.
“A year is a leap year if it is divisible by 4 and is not a century year (multiple of 100) or if it is divisible by 400. For example, 1900 is not a leap year; 2000 is.”
— quoted from “2 — The Gregorian Calendar, 2.1: Structure” in Calendrical Calculations by Nachum Dershowitz, Edward Reingold
Many blessings to all, and especially to those observing Ayyám-i-Há and/or Lent during this “Season for Non-violence” and all other seasons!
The following excerpt is the beginning of a 2023 post. Class details, a little extra context, and a quote have been updated/added.
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
— quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
Technically speaking, every day is a “liminal day” — a transitional or threshold day, a doorway in between moments; like the pauses in between the inhale and the exhale. However, Dr. Joan Borysenko talks about “liminal time” in a very specific context, one that fits into the paradigm of The Hero’s Journey. It is a time of ritual; the threshold between the known and the unknown; and — maybe most importantly — it is a moment time-stamped by grief, sandwiched between separation and return. All of this is why I consider the days of this week, and many of the days in the coming weeks, to be “liminal days.”
But this is not just a Myra-thing. These days are specifically designated by various traditions as in-between times. Not “regular” or “ordinary” days, but days when there is a heightened awareness of what’s to come and the need to be ready for what’s to come. On the Baháʼí Faith calendar, February 26th — March 1st are literally in-between days: they are intercalary days between the penultimate month of the year and the final month (which is the month of the 19-Day Fast).
For Those Who Are Not Familiar: The Baháʼí Faith is a monotheistic faith that believes in the oneness of God and religion, as well as the oneness and nobility of humanity. The community believes that, historically, there has been a “progressive revelation of religious truth” which has been shared with the world through the voices of the prophets or Divine Messengers, known as “Manifestations of God” (which include “Braham, Krishna, Zoroaster, Moses, Buddha, Jesus Christ, Muhammad, and, in more recent times, the Báb and Bahá’u’lláh”). People within the faith are taught to honor the value of different religious and philosophical traditions as well as the value of education, especially in science (which is viewed by some faiths as being contrary to religion). The Baháʼí calendar consists of 19 months, each with 19 days, and each month (and day) is named after an attribute of God. To maintain the integrity of the calendar, there are 4 – 5 intercalary days just before the final month.
The four to five intercalary days on the Baháʼí Faith calendar are named for the “essence of God” and known as Ayyám-i-Há or Days of Ha. During the Festival of Ayyám-i-Há, people may exchange small gifts, donate to charity, and participate in activities that cultivate unity.
While the customs and beliefs are different within these different traditions, people all over the world are actually preparing for some of the holiest times of their year: Christians observe Lent and Great Lent to get ready for Easter; the Baháʼí community observes the 19-Day Fast as they prepare for a new year — and these Springtime rituals contain very similar elements to each other and to Passover and Yom Kippur (in the Jewish tradition) and to the holy month of Ramaḍān (in the Muslim tradition). All of these rituals contain elements of the Yoga Philosophy’s niyamās (internal “observations”). They also fall under the rubric that Patanjali called kriyā yoga (“union in action”), which is a combination of the final three: tapas (“heat, discipline, austerity” and the practices that cultivate them), svādhyāya (“self-study”), and īśvarapraņidhāna (“trustful surrender to higher reality”). They involve fasting, prayers, reflection, self-study undertaken within a sacred context, and letting something go.
That last part is where the grief kicks in — because, whether you give something up for the Lenten season or you change your daily routine to accommodate a holy observation, the mind-body will experience some level of loss with some manifestation of grief. It will not be the same intensity of loss we experience when we lose a job or when we lose a loved one. Neither will it be the same level of grief.
However, no matter the intensity of the loss and/or grief, we have to figure out a way to move forward, into a new season of life — and while each person has an individual experience, they have it in community.
“The adoption of a new calendar in each dispensation is a symbol of the power of Divine Revelation to reshape human perception of material, social, and spiritual reality. Through it, sacred moments are distinguished, humanity’s place in time and space reimagined, and the rhythm of life recast.”
— quoted from the letter addressed “To the Bahá’ís of the World” from The Universal House of Justice, dated 10 July 2014
Please join me today (Wednesday, February 28th) at 4:30 PM or 7:15 PM for a yoga practice on Zoom. You can use the link from the “Class Schedules”calendar if you run into any problems checking into the class. You can request an audio recording of this practice via a comment below or (for a slightly faster reply) you can email myra(at) ajoyfulpractice.com.
Wednesday’s playlist is available on YouTube and Spotify. [Look for “02282021 Lofty and Rare Days”]
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)
Many blessings to all,and especially to those observing Lent, Great Lent, Ayyám-i-Há,and/or Rare Disease Dayduring this “Season for Non-violence” and all other seasons!
This is the“missing” post forTuesday, February28th. Some religious information was posted in 2021 and will be included in the Wednesday post. You can request an audio recordingof this practice via a commentbelow or (for a slightly faster reply)you can email me at myra (at) ajoyfulpractice.com.
In the spirit of generosity (“dana”), the Zoom classes, recordings, and blog posts are freely given and freely received. If you are able to support these teachings, please do so as your heart moves you. (NOTE: You can donate even if you are “attending” a practice that is not designated as a “Common Ground Meditation Center” practice, or you can purchase class(es). Donations are tax deductible; class purchases are not necessarily deductible.)
“Through the years I’ve written and taught extensively about ‘liminal time,’ that pregnant pause between what is no longer and what is not yet. Although liminal time is a known stage in all rites of passage, most people have never heard of it. Whether we’re talking about a pandemic, a war, a refugee crisis, or even a man or womanhood ritual, a graduation, or a new job far away from family and friends, the stages (though not the intensity) of a rite of passage are the same.”
– quoted from “Running the Gauntlet of the Unknown” by Joan Borysenko, PhD (posted at joanborysenko.com, April 1, 2020)
Technically speaking, every day is a “liminal day” – a transitional or threshold day, a doorway in between moments; like the pauses in between the inhale and the exhale. However, Dr. Joan Borysenko talks about “liminal time” in a very specific context, one that fits into the paradigm of The Hero’s Journey. It is a time of ritual; the threshold between the known and the unknown; and – maybe most importantly – it is a moment time-stamped by grief, sandwiched between separation and return. All of this is why I consider the days of this week, and many of the days in the coming weeks, to be “liminal days.”
But this is not just a Myra-thing. These days are specifically designated by various traditions as in-between times. Not “regular” or “ordinary” days, but days when there is a heightened awareness of what’s to come and the need to be ready for what’s to come. On the Baháʼí Faith calendar, February 26th – March 1st are literally in-between days: they are intercalary days between the penultimate month of the year and the final month (which is the month of the 19-Day Fast).
For Those Who Are Not Familiar: The Baháʼí Faith is a monotheistic faith that believes in the oneness of God and religion, as well as the oneness and nobility of humanity. The community believes that, historically, there has been a “progressive revelation of religious truth” which has been shared with the world through the voices of the prophets or Divine Messengers, known as “Manifestations of God” (which include “Braham, Krishna, Zoroaster, Moses, Buddha, Jesus Christ, Muhammad, and, in more recent times, the Báb and Bahá’u’lláh”). People within the faith are taught to honor the value of different religious and philosophical traditions as well as the value of education, especially in science (which is viewed by some faiths as being contrary to religion). The Baháʼí calendar consists of 19 months, each with 19 days, and each month (and day) is named after an attribute of God. To maintain the integrity of the calendar, there are 4 – 5 intercalary days just before the final month.
While the customs and beliefs are different within these different traditions, people all over the world are actually preparing for some of the holiest times of their year: Christians observe Lent and Great Lent to get ready for Easter; the Baháʼí community observes the 19-Day Fast as they prepare for a new year – and these Springtime rituals contain very similar elements to each other and to Passover and Yom Kippur (in the Jewish tradition) and to the holy month of Ramaḍān (in the Muslim tradition). All of these rituals contain elements of the Yoga Philosophy’s niyamās (internal “observations”). They also fall under the rubric that Patanjali called kriyā yoga (“union in action”), which is a combination of the final three: tapas (“heat, discipline, austerity” and the practices that cultivate them), svādhyāya (“self-study”), and īśvarapraņidhāna (“trustful surrender to higher reality”). They involve fasting, prayers, reflection, self-study undertaken within a sacred context, and letting something go.
That last part is where the grief kicks in – because, whether you give something up for the Lenten season or you change your daily routine to accommodate a holy observation, the mind-body will experience some level of loss with some manifestation of grief. It will not be the same intensity of loss we experience when we lose a job or when we lose a loved one. Neither will it be the same level of grief.
However, no matter the intensity of the loss and/or grief, we have to figure out a way to move forward, into a new season of life – and while each person has an individual experience, they have it in community.
“That’s the thing about a rare disease. You fight for a diagnosis for years ― on average, according to Global Genes, it takes seeing 7.3 physicians and trying for 4.8 years before getting an accurate rare disease diagnosis ― and then, even once you know, you must continue being a detective as you try to piece together the clues as to how the illness might progress. You become an expert in a disease you wish you’d never heard of.
As a parent, you also quickly morph into a nurse, therapist, chief operating officer, educational advocate, cheerleader and warrior. You feel alone, because by definition, your child’s diagnosis is exceptional. And yet, 1 in 10 Americans and 300 million people globally are living with a rare disease.
You find community not just in other people who share the specific diagnosis your family is facing, but in those struggling with any rare diagnosis. It doesn’t matter what the exact symptoms or disease trajectory are. What matters is the shared understanding that your dreams as a parent have forever shifted.”
– quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
In addition to being (what I would consider) a “liminal day,” February 28th can also be a “rare” day. Typically, when we think of a “rare” day on the Gregorian and Julian calendars, we think of February 29th, Leap Day, which is rare because it only happens every four years.** Leap day is the perfect day for Rare Disease Day, which is observed on February 28th during non-leap years like 2023. Observations on this alternate date, coincide with the anniversary of the United States House of Representatives passing the Orphan Drug Act of 1983 on February 28, 1982. The act went into effect on January 4, 1983, and it facilitated the development of “orphan drugs” (i.e., drugs for rare diseases and disorders). Japan and the European Union enacted similar acts in 1993 and 2000, respectively. Prior to the act being passed in the U. S., less than 40 drugs had been approved as treatments for rare diseases and disorders (in the whole history of the United States). In the three decades after the act went into affect, almost ten times as many drugs had been approved.
Why the difference? Why did it take an act of Congress?
Unfortunately for those who face life-threatening and life-changing diseases, research is primarily driven by pharmaceutical companies, which are mostly driven by profits – and there’s just not a lot of profit in rare diseases.
“That referral led us to the geneticist, who ended up delivering the information that changed our lives.
‘Dalia tested positive for a genetic mutation that’s associated with myoclonic epilepsy with ragged red fibers, or MERRF syndrome ― an extremely rare form of mitochondrial disease,’ the doctor said.”
– quoted from the (February 28, 2022*) Huffington Post article entitled “My Daughter’s Rare Disease Was A Mystery For Years. Here’s How We Finally Got A Diagnosis.” by Jessica Fein
Approximately 300 million people are living with a rare disease. That doesn’t sound very rare when you add in their family, friends, and caregivers. But, here’s the thing: those 300 million people are not living with the same disease. They are not even living with the same two or three diseases. In the medical community, a “rare disease” is typically defined as a disease that affects fewer than 1 in 2,000 people. That means it can affect one or two people, or several hundred around the world. In the United States, Huntington’s disease; myoclonus; Amyotrophic lateral sclerosis (ALS) – also known as motor neuron disease (MND); Tourette syndrome; muscular dystrophy; Postural Orthostatic Tachycardia Syndrome (POTS); Prader-Willi syndrome; and Usher syndrome are all considered rare diseases or rare disorders. Sickle cell anemia is also considered a rare disease; even though it affects approximately 100,000 people in the United States. Autosomal systemic lupus erythematosus, which is characterized by the presence of (the more common) systemic lupus erythematosus symptoms in two or more members of a single family, is also considered a rare disease.
Approximately 72 – 80% of rare diseases are known to be genetic. About 70% begin in childhood. Tragically, thirty percent of children diagnosis with a rare disease will not reach age 5. While some people have diseases that are degenerative, some people “outgrow” their disease. Another challenge, for people suffering from rare diseases and disorders, is that sometimes people can be suffering with “invisible” ailments – meaning that others perceive them as healthy. All of these differences in symptoms and situations makes it really hard to receive diagnosis and treatment – especially since healthcare practitioners (particularly here in the West) are taught to “lookfor horses, notzebras.” Unfortunately, rare diseases are really colorful zebras. They require patients and their family and friends to take on all the roles normally distributed between professionals.
Recently, another couple of layers have been added to the already complicated story of rare diseases. For a variety of really disturbing reasons – that I want to believe come from a lack of awareness and knowledge – people have started co-opting orphan drugs and using them for non-life threatening issues. In some cases, they are being used for purely cosmetic purposes without any regard for the people whose lives actually depend on the medication. (NOTE: This is also happening with treatments for “common diseases,” with equally devastating effects; however, those common diseases get more publicity, because they make up a larger share of the market.) On the flip side, COVID seems to have created a situation where some rare diseases are becoming more common – which means, as twisted as sounds, that some people feeling more hopefully, because more research and development is being done with regard to their ailment.
Again, it all comes down to awareness, education, perspective, compassion, and empathy. Which is the whole point of Rare Disease Day.
Established in 2008, by the European Organization for Rare Diseases, Rare Disease Day is a day dedicated to “raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and [caregivers].” The 2023 theme is “ShareYourColours” – which is an invitation to share your story. Whether you have a rare disease or whether you love and/or care for someone with a rare disease, sharing your story can be a way to raise awareness, stop the ignorance, and end stigma.
If you are not dealing with a rare disease, be open to hearing other people’s stories. As rare as they are, I have known someone dealing with almost all of the rare diseases and disorders that I used as examples (above). Or, I should say, I’ve known that I knew them, because they shared their stories. Listening, as Bruce Kramer pointed out, opens us “… a little bit more.”
“To be open is to embrace your own great big messy humanity, to cry in sadness but not despair, to recognize presence in the emptiness of the bitter moment of truth, to be afraid but not fearful. Dis ease presents the choice of being open or closed, and opening to her lessons, her gifts, her challenges, is not easy. But dis ease clarifies vision, bringing sight to the blindness of what you thought you knew about living, light to the darkness of cynicism that life’s grief piled upon itself can foster. I know ALS is a horror, yet when fully embraced, it has taught me, it has revealed to me pure unsullied, uncontaminated, unbelievable love.
In my heart of hearts, I know that love never dies.”
– quoted from “25. Faith, Part IV: What’s Love Got To Do with It?” in We Know How This Ends: Living while Dying by Bruce H. Kramer with Cathy Wurzer
Tuesday’s playlist is available on YouTube and Spotify. [Look for “06142020 World Blood Donor Day”]
NOTE: Not all rare diseases are blood-based, but the playlist contains a blood-borne subliminal message.
*NOTE: A follow-up article by Jessica Fein was also published by Huffington Post today, February 28, 2023.
**NOTE:According to the Julian calendar, Leap Year is every four years.On the Gregorian calendar, which is used by most people who will come across this post, it’s not that simple.
“A year is a leap year if it is divisible by 4 and is not a century year (multiple of 100) or if it is divisible by 400. For example, 1900 is not a leap year; 2000 is.”
– quoted from “2 – The Gregorian Calendar, 2.1: Structure” in Calendrical Calculations by Nachum Dershowitz, Edward Reingold
A Joyful Practice 